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Tag: vision impairment.

Scholarship Recipient #2: Sammy Alexander

Our second Scholarship recipient is Sammy Alexander who has Cone Rod Dystrophy. Sammy is from Western Sydney and is completing her Masters of Forensic Mental Health. She shares with us her goals and tips for other's considering studying with a vision impairment. Why did you choose to study your Masters degree? I decided to apply…

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International Women’s Day

Today is a day we celebrate woman, all that they do, and push for greater quality. I thought I’d reflect on some of the amazing woman I have met, all over the globe, since losing my sight. Each has inspired and supported me through the uncertainty and fear of losing my sight. Liz I met…

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From Puppy to Guide: Meeting Lacey’s Puppy Raiser

How does a cute, fluffy puppy end up acting as a person's guide? The process is much longer and involves many more people than you would expect. I always knew there was a long process a puppy goes through to become a Guide Dog, but I wan't aware of the details. When I was asked…

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6 Things Not to Say to a Person with Vision Loss

It is hard enough to cope at times with having a vision impairment, and sometimes comments can really get to you. I know (most) people mean well, but when you get asked the same questions regularly which really have no good answer or are just plain silly, it starts to eat away at you. I…

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Spotlight on Retinitis Pigmentosa

What is it? Retinitis Pigmentosa (RP) is the name given to a group of conditions that affect the rods and/or cones of the retina and thus light perception. RP is hereditary and is a degenerative condition. The cells that make up the retina are cones and rods. There are far more rods and these make…

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Updates on Clinical Trials

There are numerous clinical trials and research projects happening all over the globe for Stargardt's in different scientific and technological fields giving us great hope for the future. Here are the current clinical trials taking place: Drug Trial of ALK-001 Alkeus Pharamceuticals are conducting a phase 2 trial of an oral drug in the United States. A phase 2…

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We are all unique

A phrase I seem to be continually hearing goes something along the lines of "another person who is legally blind could do it". The most recent time was in reference to attending a residential school for my university course located in another state. I want to get something straight, just because people are classified as…

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What’s all the talk about Optogenetics?

In the past couple of months there have been several news articles talking about optogenetics and its use as a treatment for eye conditions including Stargardt's, Retinitis Pigmentosa and Macula Degeneration. I hadn't come across the term so I thought I'd do some research into what exactly it is, since I am known to have…

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Real People #4

Today I'd like to share another story from someone I have been able to become good friends with. Janet is another young lady who I have watched flourish and grow and I am so proud of the positive attitude she has adopted that also helps me stay positive.  Janet Ngan, 24, Phoenix, Arizona, USA When…

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