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Tag: support group

See Through My Eyes on Facebook

If you are on Facebook and don't already follow "see Through My Eyes - Stargardt's Disease", head over and make sure you 'like' the page here. On the page I share up-to-date information on clinical trials and research articles, Stargardt's in the news and other information on services and resources available to people with vision…

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Online Support Groups

I know I have been very slack with my blog and it's time I made up for it! I have been very busy having a love hate relationship with my cane, giving up driving and leaving my job. You could say I'm having a mid life crisis (at 27).  Something I have been meaning to…

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Fighting Youth Blindness Charity Dinner

I'm very excited to share that Retina Australia is holding a Fighting Youth Blindness Charity Dinner! It will be held Saturday 20th July at Castle Hill RSL in Sydney. We are aiming to raise money to fund research for retinal diseases including Stargardt's Disease and Retinitis Pigmentosa, for support for those suffering from the diseases…

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National Disability Insurance Scheme Petition

To the Australians - you have probably heard the debate about the National Disability Insurance Scheme in the media. I will admit I didn't really think much of it as I hate politics and I didn't really know what it would mean for me being vision impaired. Guide Dogs have started a campaign to ensure…

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Guide Dogs NSW/ACT

I had my first contact with Guide Dogs last week, but no, unfortunately not to get a cute little retriever (that I want so badly to cuddle). Not only do they do the obvious guide dogs but also mobility training, advocacy and information services amongst other stuff. My first appointment was to get to know me…

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Beautiful Art by a Stargardt’s Friend :)

I'd like to share artworks created by Jenna who has Stargart's Disease. These are a few of my favourites. She creates such gorgeous, emotional works and to think she doesn't have her central vision I can't believe how absolutely amazing they are. It is truly inspiring. Thanks Jenna!

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More to add for “not just a vision issue”

I've had an overwhelming response from my post "Not just a vision issue" so I have put together a list of links that some of you might find useful for counselling, psychology or even just to have a chat. These are all Australian organisations and if anybody has any from overseas please share. Most importantly,…

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Thank You

I just want to say a big thank you to everybody who has contacted me and supports this blog. I can not explain how much I appreciate your kind words and encouragement. I will do my best to gather information and get Stargardt's out there so hopefully in the near future we can have a…

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