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Tag: Stargardt’s Disease

My NDIS Experience

I have now had my NDIS plan for 3 months, and I've been meaning to reflect on the process and share what I've learnt. I had anticipated the rollout in my area for some time as there were many services I wanted to access but simply couldn't afford it. Here's the main parts of the…

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An Experience Participating in a Clinical Trial

There are a variety of clinical trials taking place worldwide specifically for visual conditions such as Retinitis Pigmentosa, Macula Degeneration and Stargardt's Disease. Participating in a trial can be a difficult decision and comes with risks that need to be carefully considered. One such clinical trial taking place on people with Stargardt's Disease in the…

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Scholarship Recipient #1: Grace Jarrott

See Through My Eyes has given four deserving and inspiring university students a scholarship to assist in their education. We received applications from across the country, all who shared their stories of persistence and passion. It was a difficult decision to choose only four and we are looking forward to our next round later this…

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Article: Chrissy’s push to break down barriers

Thank you to Guide Dogs NSW/ACT for writing this wonderful article on our Founder, Chrissy Antonopoulos, and her journey with Guide Dog Lacey. Chrissy talks about her goals for 2017 including breaking down the stereotypes of blindness. https://www.guidedogs.com.au/news-events/news/chrissys-push-break-down-barriers    

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From Puppy to Guide: Meeting Lacey’s Puppy Raiser

How does a cute, fluffy puppy end up acting as a person's guide? The process is much longer and involves many more people than you would expect. I always knew there was a long process a puppy goes through to become a Guide Dog, but I wan't aware of the details. When I was asked…

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Life with a Guide: Six Months On

Can you believe six months has already past since I first wrote about getting my Guide Dog, Lacey? Well I certainly can't. Even though it feels like Lacey has been part of our family for as long as I can remember, the past few months have flown. Image: Giving Lacey directions walking down a street.…

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The Ups and Downs of Guide Dog Training

Image: Lacey and I with the statue Guide Dog. I am almost at the end of my training with my new Guide Dog Lacey. We did three 'full-time' weeks and have one more day left before we graduate as a team! It has been an exciting, stressful, tiring, frustrating and rewarding few weeks. Week one…

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Day 1 of Guide Dog Training

What. A. Day. I don't think I've had a day where I have experienced so many emotions in such a short period of time. I'll start at the beginning. I had a sleepless night; I was anxious about the day ahead. I couldn't really put my finger on why my belly was churning and my chest…

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Guide Dog Eve

Tomorrow is the day I meet my first Guide Dog. My emotions are mixed. I'm nervous, excited and scared. There is a lot of planning and work that goes into receiving a Guide Dog and I hope to share my continuing journey with my new dog. This week knowing that I would meet my dog,…

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Living With a Degenerative Condition

Stargardt’s Disease, along with other retinal diseases and general ocular diseases, is a degenerative condition. This means that the condition continually worsens. Usually the condition is caught in the early stages, and sometimes preventative measures can be taken to slow progress, but in the case of Stagrardt’s and other retinal diseases, there is nothing you…

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