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Tag: Research & Clinical Trials

Updates on Clinical Trials

There are numerous clinical trials and research projects happening all over the globe for Stargardt's in different scientific and technological fields giving us great hope for the future. Here are the current clinical trials taking place: Drug Trial of ALK-001 Alkeus Pharamceuticals are conducting a phase 2 trial of an oral drug in the United States. A phase 2…

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What’s all the talk about Optogenetics?

In the past couple of months there have been several news articles talking about optogenetics and its use as a treatment for eye conditions including Stargardt's, Retinitis Pigmentosa and Macula Degeneration. I hadn't come across the term so I thought I'd do some research into what exactly it is, since I am known to have…

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Latest News on Stem Cell Research

I know everybody has been keenly following the Ocata clinical trial using human derived embryonic stem cells to treat both Stargardt's Disease and Age Related Macular Degeneration. Ocata published a  press release on 31 March. Here are the main points: The Phase I/II study has been successfully completed on 38 patients with both conditions. This phase…

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Vitamin A and Stargardt’s

The only advice I was given when diagnosed with SD was that vitamin A was causing my vision loss and to not take supplements with Vitamin A. This totally contradicts the widely known fact that Vitamin A is essential for eyes. It's not that this fact is incorrect, it's that it doesn't wholly apply to…

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Update on Stem Cell Treatment

If you haven't already heard, results from the phase I trial using human embryonic stem cells for patients with Stargardt's Disease and Macular Degeneration have been published in the Lancet, and the results are very promising! Nine patients were treated from each disease which involved surgical implantation of the stem cells into the retina of…

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Update on Current Clinical Trials

It is an exciting time in medicine and especially for Stargardt's sufferers and others with inherited retinal diseases. Here is a summary of current trials: Phase I/IIa study of StarGen (Gene Therapy) This study is being conducted by Oxford Biomedica at two sites, Oregon Health and Science University (US) and Institut de la Vision (France).…

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Update on ACT trial

ACT recently announced treatment of a Stargardt's patient with 'better vision', as compared to the previous patients treated. It is very exciting following the trial progress and I can not wait to see the results. The second patient treated had visual acuity of 20/100 (6/30) which is exciting as the trial is not only looking…

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Bionic eye update

Bionic Vision Australia has had vast media coverage in the past week with there bionic eye prototype. They have inserted the device into the first totally blind patient and she has been able to see flashing lights. Check out their facebook page for links to articles: Bionic Vision Australia Facebook Page And here is their…

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Bionic Eye

Have a look at this recent video on the bionic eye. It's crazy how maazing technology can be.

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Updates on Research

Blindness and visual impairment seems to be in the media quite a bit lately. I've gathered the most recent updates for you all to check out. A study in the UK has successfully inserted implants into three patients retinas. The patients treated had Retinitis Pigmentosa and saw immediate results once the implant was in use.…

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