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Tag: life

6 Things Not to Say to a Person with Vision Loss

It is hard enough to cope at times with having a vision impairment, and sometimes comments can really get to you. I know (most) people mean well, but when you get asked the same questions regularly which really have no good answer or are just plain silly, it starts to eat away at you. I…

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My Fear Vs My Optimism

Over the past few years I have had numerous thoughts that provoke fear and sadness about things in my future. From having my whole life seemingly planned (yes I know I'm slightly OCD) and my goals within my reach to all of it taken from underneath me. I sometimes look back at the day of…

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Today is a milestone

Today is a milestone in my journey. Apart from being my sister's birthday (Happy Birthday J!), it's also the day my driver's licence expires.  I've held my licence since I was 16 and got my Learner's. My first care was this horrendous red Mercedes Benz station wagon that fit seven people, two backwards in the…

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Real People # 1

In the coming months I will be sharing stories of others living with Stargardt's and other retinal dystrophies. These people have all inspired me on my journey and no doubt will inspire you too! First up is Jenna! Jenna Lawson, 22, Florida, United States What is your diagnosis and how does it affect you? In…

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