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Tag: Inspiration

Shaun Baldacchino

Living with vision loss is no barrier to success. I spoke with Shaun who is a twenty-something year old with Retinitis Pigmentosa who works as an Employee Relations Consultant for the NSW government. Read his journey of navigating high-school and university with low vision and how he hasn't led his circumstances stand in the way…

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Scholarship Recipient #3: Kimberlee Brooker

Our second scholarship recipient is Kimberlee Brooker from the South Coast of NSW. Kimberlee is studying a Bachelor of Laws at the University of Wollongong. What is your visual condition and how has it affected you? I lost my sight suddenly over night at the age of five. I was diagnosed three months later with…

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Scholarship Recipient #2: Sammy Alexander

Our second Scholarship recipient is Sammy Alexander who has Cone Rod Dystrophy. Sammy is from Western Sydney and is completing her Masters of Forensic Mental Health. She shares with us her goals and tips for other's considering studying with a vision impairment. Why did you choose to study your Masters degree? I decided to apply…

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International Women’s Day

Today is a day we celebrate woman, all that they do, and push for greater quality. I thought I’d reflect on some of the amazing woman I have met, all over the globe, since losing my sight. Each has inspired and supported me through the uncertainty and fear of losing my sight. Liz I met…

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My Fear Vs My Optimism

Over the past few years I have had numerous thoughts that provoke fear and sadness about things in my future. From having my whole life seemingly planned (yes I know I'm slightly OCD) and my goals within my reach to all of it taken from underneath me. I sometimes look back at the day of…

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Real People #3

This month's story comes from a fellow Stargardt-er from my city. We live on opposite sides of Sydney and as yet have not met in person, but thanks to social media we have been able to connect and be supports for each other. Mike Lainis, 53, Sydney, Australia When were you diagnosed with Stargardt's and…

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Today is a milestone

Today is a milestone in my journey. Apart from being my sister's birthday (Happy Birthday J!), it's also the day my driver's licence expires.  I've held my licence since I was 16 and got my Learner's. My first care was this horrendous red Mercedes Benz station wagon that fit seven people, two backwards in the…

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Real People #2

This month's story comes from a good friend of mine who has been a great support to me from my early days of diagnosis. I hope he can inspire you too. Jono Goerlach, 32, Canberra, Australia Tell us a bit about your condition and your symptoms. At age 15 I was diagnosed with Usher Syndrome…

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Standing Up For Your Rights

I haven't really touched on standing up for myself in terms of my rights as a person with a 'disability' since starting this blog almost five years ago now. Partly due to the fact that I am really bad at doing it!  My most current problem is with studying at university. I am due to…

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Real People # 1

In the coming months I will be sharing stories of others living with Stargardt's and other retinal dystrophies. These people have all inspired me on my journey and no doubt will inspire you too! First up is Jenna! Jenna Lawson, 22, Florida, United States What is your diagnosis and how does it affect you? In…

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