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Tag: fundus flavimaculatus

Watch out, cane about!

Guide Dogs have launched their "Watch out, cane about" campaign with an informative and positive video. Everyday pedestrians are blind folded and attempt to cross a road with a cane and a guide. It is really interesting to see the reactions of others. The is also a guide on what to do if you see…

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Finally a pen I can see!

When I had my consultation with the vision impairment specialist, he suggested I invest in a Pentel pen. Usually he gives a freebie to all his clients but unfortunately he had run out. He said I was able to get the pen from my local Officeworks (stationary shop) and they came in a range of…

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IOS 7 and VIPs

Today I updated to IOS 7 on my iPad (I use a Samsung mobile). I'm not actually sure if previous versions have as many accessibility features, but I found the most useful feature for my vision was the "Larger type" text feature. It gives you the option to increase the font size in any app…

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For the girls (and guys?!)

Something I have been battling for a while is grooming. It's ever so hard to do the usual girly grooming that when you are sighted you take for granted. It seems like a petty issue but it can have a whole lot of impacts especially with self esteem. My biggest problem now is I can't tell when…

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DNA tells all

I recently got preliminary results from my genetic testing (that I did almost two years ago now!). They showed that I do have the mutation in the ABCA4 gene and it is the recessive condition. I need to have further testing to determine whether I have two recessive genes (from each of my parents) or…

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New gadgets!

Today I had my second work place assessment to see if I need any more help since my vision has deteriorated. Once again I applied through Job Access, an Australian government reimbursement program. Originally I received my ZoomText software, a large screen and a hand held magnifier. This time round I didn't really know what exactly I…

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Update on ACT trial

ACT recently announced treatment of a Stargardt's patient with 'better vision', as compared to the previous patients treated. It is very exciting following the trial progress and I can not wait to see the results. The second patient treated had visual acuity of 20/100 (6/30) which is exciting as the trial is not only looking…

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I’m still here!

I have been so preoccupied the past months with my grandma but I have not forgotten about this! I've actually learnt a lot from her recently. The more time I've spent with her the more I appreciate my life. She was taken down overnight, lost all her independence and freedom, and I've been sooking for…

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National Disability Insurance Scheme Petition

To the Australians - you have probably heard the debate about the National Disability Insurance Scheme in the media. I will admit I didn't really think much of it as I hate politics and I didn't really know what it would mean for me being vision impaired. Guide Dogs have started a campaign to ensure…

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My absence

As some of you have noticed I haven't been writing lately. Mainly because I haven't found what I want to say. My grandmother was diagnosed with a grade 4 (the worst) brain tumour 8 weeks ago and has been in hospital since. Her life and my families lives have been turned upside down overnight. The…

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