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Raffle tickets now on sale!

Relay4Vision Raffle Tickets are now available for purchase!  1 ticket $5 | 3 tickets $10 | 7 tickets $20 | 20 tickets $50 Raffle will be drawn 8pm Saturday 17 June 2017 at Relay4Vision. Winners will be notified by phone. Tickers can be purchased on the day of event, or click the link below to…

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Being genetically counselled

I had made an appointment to see a genetic counsellor about 3 months ago and the time came this week. I hadn't really given much thought to it to be honest. The main reason I went was to do genetic testing to find out if I actually have the known Stargardt's mutated gene, as I…

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Thank You

I just want to say a big thank you to everybody who has contacted me and supports this blog. I can not explain how much I appreciate your kind words and encouragement. I will do my best to gather information and get Stargardt's out there so hopefully in the near future we can have a…

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Help through technology

I thought I'd share with you all my long process with accessing assistance technology for the workplace. Since my diagnosis 18 months ago I have been in contact with Vision Australia to find assistance especially with regards to work. My work is predominantly computer based and I also have to read small text constantly, so…

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