An Experience Participating in a Clinical Trial
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January 02, 2018
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By Chrissy Renee
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no comment
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'Real People' - Stories of Vision Loss, Chrissys Blog, Experiences, Research & Clinical Trials
There are a variety of clinical trials taking place worldwide specifically for visual conditions such as Retinitis Pigmentosa, Macula Degeneration and Stargardt's Disease. Participating in a trial can be a difficult decision and comes with risks that need to be carefully considered. One such clinical trial taking place on people with Stargardt's Disease in the…
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Updates on Clinical Trials
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August 25, 2015
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By Chrissy Renee
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3 comments
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There are numerous clinical trials and research projects happening all over the globe for Stargardt's in different scientific and technological fields giving us great hope for the future. Here are the current clinical trials taking place: Drug Trial of ALK-001 Alkeus Pharamceuticals are conducting a phase 2 trial of an oral drug in the United States. A phase 2…
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What’s all the talk about Optogenetics?
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June 01, 2015
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By Chrissy Renee
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1 comment
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In the past couple of months there have been several news articles talking about optogenetics and its use as a treatment for eye conditions including Stargardt's, Retinitis Pigmentosa and Macula Degeneration. I hadn't come across the term so I thought I'd do some research into what exactly it is, since I am known to have…
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Latest News on Stem Cell Research
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April 06, 2015
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By Chrissy Renee
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1 comment
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I know everybody has been keenly following the Ocata clinical trial using human derived embryonic stem cells to treat both Stargardt's Disease and Age Related Macular Degeneration. Ocata published a press release on 31 March. Here are the main points: The Phase I/II study has been successfully completed on 38 patients with both conditions. This phase…
Read MoreUpdate on Current Clinical Trials
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November 22, 2013
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By Chrissy Renee
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7 comments
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It is an exciting time in medicine and especially for Stargardt's sufferers and others with inherited retinal diseases. Here is a summary of current trials: Phase I/IIa study of StarGen (Gene Therapy) This study is being conducted by Oxford Biomedica at two sites, Oregon Health and Science University (US) and Institut de la Vision (France).…
Read MoreDNA tells all
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August 18, 2013
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By Chrissy Renee
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I recently got preliminary results from my genetic testing (that I did almost two years ago now!). They showed that I do have the mutation in the ABCA4 gene and it is the recessive condition. I need to have further testing to determine whether I have two recessive genes (from each of my parents) or…
Read MoreUpdate on ACT trial
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April 21, 2013
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By Chrissy Renee
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1 comment
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ACT recently announced treatment of a Stargardt's patient with 'better vision', as compared to the previous patients treated. It is very exciting following the trial progress and I can not wait to see the results. The second patient treated had visual acuity of 20/100 (6/30) which is exciting as the trial is not only looking…
Read MoreBionic eye update
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September 03, 2012
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By Chrissy Renee
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2 comments
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Bionic Vision Australia has had vast media coverage in the past week with there bionic eye prototype. They have inserted the device into the first totally blind patient and she has been able to see flashing lights. Check out their facebook page for links to articles: Bionic Vision Australia Facebook Page And here is their…
Read MoreBionic Eye
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June 03, 2012
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By Chrissy Renee
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no comment
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Have a look at this recent video on the bionic eye. It's crazy how maazing technology can be.
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