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Category: ‘Real People’ – Stories of Vision Loss

Meet Our Scholarship Recipient Ming Luo

One of this year's scholarship recipients is 20 year old Ming Luo from Western Australia. Ming is studying a Bachelor of Commerce at the University of Western Australia. We asked Ming about her goals and how she would use the scholarship funding. Did you vision loss contribute to your decision to study a Bachelor of…

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An Experience Participating in a Clinical Trial

There are a variety of clinical trials taking place worldwide specifically for visual conditions such as Retinitis Pigmentosa, Macula Degeneration and Stargardt's Disease. Participating in a trial can be a difficult decision and comes with risks that need to be carefully considered. One such clinical trial taking place on people with Stargardt's Disease in the…

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Shaun Baldacchino

Living with vision loss is no barrier to success. I spoke with Shaun who is a twenty-something year old with Retinitis Pigmentosa who works as an Employee Relations Consultant for the NSW government. Read his journey of navigating high-school and university with low vision and how he hasn't led his circumstances stand in the way…

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International Women’s Day

Today is a day we celebrate woman, all that they do, and push for greater quality. I thought I’d reflect on some of the amazing woman I have met, all over the globe, since losing my sight. Each has inspired and supported me through the uncertainty and fear of losing my sight. Liz I met…

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Real People #4

Today I'd like to share another story from someone I have been able to become good friends with. Janet is another young lady who I have watched flourish and grow and I am so proud of the positive attitude she has adopted that also helps me stay positive.  Janet Ngan, 24, Phoenix, Arizona, USA When…

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Real People #3

This month's story comes from a fellow Stargardt-er from my city. We live on opposite sides of Sydney and as yet have not met in person, but thanks to social media we have been able to connect and be supports for each other. Mike Lainis, 53, Sydney, Australia When were you diagnosed with Stargardt's and…

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Real People #2

This month's story comes from a good friend of mine who has been a great support to me from my early days of diagnosis. I hope he can inspire you too. Jono Goerlach, 32, Canberra, Australia Tell us a bit about your condition and your symptoms. At age 15 I was diagnosed with Usher Syndrome…

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Real People # 1

In the coming months I will be sharing stories of others living with Stargardt's and other retinal dystrophies. These people have all inspired me on my journey and no doubt will inspire you too! First up is Jenna! Jenna Lawson, 22, Florida, United States What is your diagnosis and how does it affect you? In…

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